Couple blamed baby’s cries on teething, but it was rare cancer

A UK couple who initially believed their cranky baby was teething was shocked to learn he actually has a rare cancer.

When Robin Samuel, now 18 months old, woke up in the middle of the night screaming in January, his parents rushed him to the hospital.

It was there that doctors performed an ultrasound that revealed a 10-centimeter lump above his kidney. He was diagnosed with high-risk neuroblastoma cancer.

“We thought that he was starting to teethe because he’s normally a very happy baby,” his mom, Rachel Samuel, 43, told Caters News Agency.

“He was diagnosed with cancer the same day because it’s so rare,” she continued. “When they see it, they know exactly what it is.”

According to the American Cancer Society, neuroblastoma cancer typically appears in children, as it begins in “very early forms” of nerve cells.


Photo of two parents with their baby in a carrier.
A UK couple thought their baby was teething — it turned out he has cancer.
Caters News Agency

Photo of a baby in a yellow sweater.
Their son, Robin Samuel, was diagnosed with high-risk neuroblastoma cancer.
Caters News Agency

Photo of a baby in a hospital bed.
“We thought that he was starting to teethe because he’s normally a very happy baby,” his mom, Rachel, told Caters News Agency.
Caters News Agency

Doctors discovered that the cancer had spread to Robin’s abdomen, pelvis, spine and bone marrow.

After completing a “grueling” course of chemotherapy, the London tot has been declared cancer-free — but his mom said it’s likely to return.

Robin’s chance of long-term survival is only 40-60%.

If the cancer returns, the odds drop to 5-10%, according to his mom.


Photo of a baby and his mom in a stroller.
Robin woke up screaming in the middle of the night, which is when his parents realized something was wrong.
Caters News Agency

Photo of a mom and baby.
The family is trying to raise money for a new treatment option for the tot.
Caters News Agency

Photo of a baby clutching a play guitar.
Robin has been declared cancer-free, but there’s a chance it could return.
Caters News Agency

Now, the family is trying to raise nearly $400,000 for a “pioneering” immunotherapy treatment in Spain that could increase his survival chances to 90%.

“He has something called the oncogene, which means the cancerous cells in his body replicate stupidly fast, so if there’s anything remaining that can’t be detected, it will develop very quickly,” Rachel told Caters.

“We need him to have this treatment as soon as possible,” she added. “So the sooner he gets it, the better chance he will have.”


Photo of a woman with her baby.
“He was diagnosed with cancer the same day because it’s so rare,” Rachel said. “When they see it, they know exactly what it is.”
Caters News Agency

Photo of a son and father.
The treatment could be life-changing for the baby.
Caters News Agency

So far, the family has collected $125,000.

“If he gets the treatment, his body will learn to identify the dangerous cells and kill them before they become problematic,” Rachel explained.

Amid these challenges, Robin has remained very brave.

Rachel also praised his two older brothers, from her previous marriage, for being a “pillar of strength” to Robin during this difficult time.

“They just want to play with Robin,” Rachel noted. “We tried really hard to maintain a normal home environment and create some really happy memories with him.”